Plans are underway to open the Jan Aushadhi stores to about 1,000 major railway stations in India as part of the government's commitment to make quality medicines available at low cost to the public. Plans are also underway to open such outlets in bus stands in different states with the aim of bringing the network back to small towns and villages.
The Uttar Pradesh government has launched a vaccination campaign in six of its districts where by children receive free vaccines against pneumonia to combat the threat.
As the number of opioid-related deaths continues to rise across Canada, new federal legislation is aimed at reducing the number of deaths from overdoses.
The World Health Organization (WHO) is to launch a pilot project this year to evaluate inexpensive copies of costly drugs for biotechnology cancer to make these drugs more accessible in the poorest countries.
Researchers have developed a custom algorithm that predicts the impact of certain foods on an individual's blood sugar, according to a new study published in PLOSComputational Biology.
The Indian Council of Medical Research (ICMR) has launched "The Indian Rare Disease Registry" to meet the unmet needs of patients with rare diseases and to help the country develop data and information to support research and Development and improve innovation.
This India registry launched on 27th April 2017 during The National Initiative for Rare Diseases (NIRD), organized by ICMR, AIIMS, JNU and PRESIDE, seeks to take the first steps to identify patients.
The scope of this registry will evolve over time, maturing from an outreach/community-building effort or a means for a basic understanding of patient and disease characteristics, to a supportive mechanism for research funding and attracting health care providers. It intends to comprehensively cover the spectrum of rare and ultra-rare disorders prevalent in the country but initially it shall only gather data of conditions which have an established treatment available in India or globally. With time, many of the other diseases (some without treatment) would also be incorporated.
The registry is an effort to give Indians who suffer from any form of rare disease a chance to be visible and would initially be based on the hospital or doctor. The Registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purposes.
The benefits of the Registry include monitoring prevalence, incidence & natural history of disease over a period of time towards guiding policy decisions; support research initiatives that aim to better understand the distribution and determinants of rare diseases; facilitating access to innovations in genetics, molecular and computational biology, and other technological advances for patients suffering with rare diseases; and bridge the lack of data on rare disorders in our population thus facilitating access to supportive care for countless individuals suffering from these disorders.
The registry will seek to benefit for the patients as they will be identified and therefore would have increased possibility of access to treatment depending upon the inclusion criteria. For the government, it will know exactly the number of patients and therefore provide resources to help address the patients’ needs. For research bodies, the registry will be a source of plethora of information which will be made available for research and development activities to flourish in India. For publications, the data would form the basis of several publications thereby strengthening the country’s stand as a global leader in healthcare and for clinical trials, the patients and local R&D would also benefit.
A growing number of healthcare institutions and the growing demand for modernization of health care, according to experts, have made it even more important to set up a robust computer system by the Indian health accessible and affordable.
The National Pharmaceutical Pricing Authority (NPPA) has set price caps for an additional 15 drugs, including those used for the treatment of heart disease, infections, cancer, hypertension and pain relief.
The US Food and Drug Administration (FDA) has posted warning letters to 14 US companies that illegally sell more than 65 products that fraudulently claim to prevent, diagnose, treat or cure cancer. The products are marketed and sold without the approval of the FDA, most often on websites and social media
The Maharashtra Food and Drug Administration (FDA) has warned two Fortis hospitals in the city of strict action for allegedly reusing disposable angio medical devices and overcharging patients for them.
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